Yesterday (Friday) Madison had an appointment with a physician who has a heart for children with downs syndrome. We initially met him back in March. He is more of a resource than anything else and we don't meet with him often. He thought Madison was doing great. He was very impressed with her social skills. From his quick exam he felt that she was meeting milestones of a 6 to 7 month old. He told me that it usually correlates to how long they were in the hospital. I disagreed with him on where she was at milestone wise, as I told him she is sitting up on her own, rolls over, crawls backwards, reaching, grabbing things, trying to stand if you give her right environment for it, etc... He didn't see much of this because it's kind of hard to do on a small exam table. None the less, he was impressed. He also said she probably won't walk until the age of 2 and will eventually have issues with a lot of changes. We shall see what God has in store. :-)
He asked if I wanted to hear her heartbeat. I eagerly said yes and took the stethoscope from him. I always forget I have one at home and can listen at anytime. I bought it when I became licensed as an EMT (didn't renew my license) and we use to use it when I was pregnant to hear the girls. :-) What better purpose. :-) Back to that amazing beautiful sound....at first I just heard a "regular heartbeat" that is such a beautiful sound, then he gradually moved the scope and I heard the "swish, swish, swish...." I think my heart stopped and I said "ohhhhh" with concern knowing that was the leaking valves I could hear. We know the valves are leaking and the leaks have increased but when you hear it and see it on the echo...gulp. As I've said so many times before. Someone may look amazing on the outside but inside may be broken. That goes for physical and emotional. Little Miss Madison is no different. We frequently get comments from strangers, friends, and family that she looks great and doesn't look sick. We totally agree and would think the same if we didn't care for her daily, and every time we change her diaper or her clothes are reminded by seeing her scars on her chest and stomach. Let alone administering her medications, caring for her with a feeding tube, and comforting when she throws up until she is exhausted. Don't be deceived by looks, you never know what is going on in someones life or inside their amazing and wonderfully made body!
No doubt, Little Miss Madison is a true gift as is her big Sister Abigail. Both are miracles, some day I'll share more on that. To God be all the glory!
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