Wow flash backs! Just had to bring something to the NICU in Hartford! I was flooded with emotions as soon as I got off the elevator. As I saw the huge giraffe on the double doors to go into the NICU it took everything in me not to cry! The secretary remembered me and asked how Madison was. As I stood there explaining the next steps we take I took little peeks to where Madison's isolette was. Gulp....so very thankful I get to hold my babies! Don't know why we are in this journey but I am blessed.
It always amazes me the things people say. The secretary at the NICU listened briefly to my update and chimed in "well it is common that stitches break in surgery and they have to go back in". I told her that they think that one of the stitches popped on the mitral valve a couple of days after the surgery but that doesn't explain the tricuspid valve. They weren't even positive it was the stitch. The surgeon said in surgery her anatomy of the valves wasn't what they were expecting and it made it more challenging. As far as common. I doubt this situation was common at all because both our surgeon and cardiologist in Boston consulted with teams of doctors to discuss what was the cause and what to do and even when they met to discuss it with us were uncertain and were consulting with more doctors on what to do. In that meeting Bill asked if we could pray for wisdom for them as they make a decision what to do and counsel with other experts in the field. We all held hands and prayed. Makes me tear up writing that! We don't know what God's plan is in any of this or how many lives were touched or will be touched from our story. None the less people sometimes should just remain silent and listen. The secretary proceeded to compare my daughters open heart surgery to an ulcer surgery! I think my jaw nearly dropped!
I look forward to giving back to the families at the NICU and hopefully to the families in Boston.
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